This week was pretty good with Jason. He is doing well at home and he is now up to 8 pounds and 3 oz. His oxygen needs have been reduced by his cardiologist and it makes thing better all though out the day.l He is only on supplemental oxygen in the night time while he sleeps. This makes it easy to move about the house with him during the day without having to have an oxygen delivery tube snaking behind us as we go.
Today was a really big day because we finally got up the courage to replace Jason's nasogastrc (NG) tube. I can say there is nothing funny about taking a tube and passing it down your your nose down into the stomach. Its been a month since Jason had his last one put in and we have been home since we left UCSF. We were trained very well on the proper insertion and placement techniques in case we would have to actually do it at home. I really admire the coaching and encouragement they gave us, and today we had to draw upon it. We took out his old NG tube and gave him about two hours without it which was right between feedings. Then when it came time for another feeding, we put in the replacement NG tube. It can be very nerve-wracking to do on anyone, let alone a small infant who you can't instruct to swallow on command or have to listen to the crys as it goes it. But Jason was very good about it and settled down very quickly after it was in and we veriefied (4 times) that it had gone into the proper place.
(Really, I am not without a sense of humor. If you wan to see a funny video on the subject, check out these guys who posted a video on YouTube. They appear to be servicemembers so Im sure they can handle the discompfort.)
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